It feels so strange to say that we had a week where absolutely nothing happened. We didn't need to rush Eli or the girls into any extra appointments. I actually had three healthy children for an entire week.
Eli's home care nurse was on vacation this week, so we didn't see any doctors, specialists or nurses all week. I did talk to his GI doc on Wednesday and gave him Eli's weights for the week. Eli is still boucing around the same two-ounces and was 6 lbs 14 oz this morning. We have to go into Children's lab next week and have more nutrition labs drawn, but got the all-clear for this week. It has been so nice to have an entire week where Eli can just stay home and be a baby and not a patient. Please pray that Eli is able to gain weight and we can continue to have more "normal" week.
Eli got to play with his OT on Thursday afternoon. He is making baby steps in his development. Eli's new thing this week is his hands. He is getting much better at getting them up to his mouth and bringing them together. The only problem is once Eli gets his hands into his mouth, he pulls out his paci. He acts surprised for a second and then starts to shriek when he realizes that he lost his paci again. I think Eli would really like to suck his thumb if it was just a little bit bigger.
Eli is also starting to want to sit up a lot more. I don't know if it is because of his reflux that he is more comfortable this way, but it is a good sign that he is getting stronger in his head and neck. Eli tends to curl over when in a sitting position due to all of his abdominal surgeries. We got some good exercises to work on from his OT and hopefully over time he will just continue to get stronger.
Next week we have appointments for Eli's 6-month well-baby appt, follow-up with his eye doctor and some lab work to get done. Please pray that everything goes well and I don't have much to update on Eli's health.
The picture below is Eli in his new bouncy chair he got from his Grandma for Christmas. He's not quite sure about the waterfall or all the buzzing on his bottom, but he does like to just sit in the chair for a few minutes and just look around.
Eli's home care nurse was on vacation this week, so we didn't see any doctors, specialists or nurses all week. I did talk to his GI doc on Wednesday and gave him Eli's weights for the week. Eli is still boucing around the same two-ounces and was 6 lbs 14 oz this morning. We have to go into Children's lab next week and have more nutrition labs drawn, but got the all-clear for this week. It has been so nice to have an entire week where Eli can just stay home and be a baby and not a patient. Please pray that Eli is able to gain weight and we can continue to have more "normal" week.
Eli got to play with his OT on Thursday afternoon. He is making baby steps in his development. Eli's new thing this week is his hands. He is getting much better at getting them up to his mouth and bringing them together. The only problem is once Eli gets his hands into his mouth, he pulls out his paci. He acts surprised for a second and then starts to shriek when he realizes that he lost his paci again. I think Eli would really like to suck his thumb if it was just a little bit bigger.
Eli is also starting to want to sit up a lot more. I don't know if it is because of his reflux that he is more comfortable this way, but it is a good sign that he is getting stronger in his head and neck. Eli tends to curl over when in a sitting position due to all of his abdominal surgeries. We got some good exercises to work on from his OT and hopefully over time he will just continue to get stronger.
Next week we have appointments for Eli's 6-month well-baby appt, follow-up with his eye doctor and some lab work to get done. Please pray that everything goes well and I don't have much to update on Eli's health.
The picture below is Eli in his new bouncy chair he got from his Grandma for Christmas. He's not quite sure about the waterfall or all the buzzing on his bottom, but he does like to just sit in the chair for a few minutes and just look around.
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